“How are you?”
“How’s it going?”
While I’ve often had full-blown, soul-bearing conversations result from my posing these simple prompts, the typical range of expected replies remains fairly limited:
“Good, and you?”
“Eh, you know…”
“Not much. You?”
I suppose these exchanges serve some purpose in social settings, though I tend to be aware of the ironic distance evident in these greetings. That is, I find it odd that we ask how someone is if we don’t actually want to know. Most often, unfortunately, my observation is that these exchanges are an obligatory nicety we feel compelled to offer as a prelude before getting someone to do what we want them to do (e.g., ring out my order, buy this car, stop talking to me, etc.).
That said, of all such programmed responses to “How are you?” my least favorite is the seemingly ubiquitous reply of “SSDD.” It’s not that it offends me. It’s that it makes me sad. Sad to think that people choose to keep living unfulfilling, uninteresting, monotonous—unhappy—lives, day after day, ad infinitum.
Yet recently, someone asked how I was, and I found myself thinking and responding in just about this way—not in exact choice of words, but certainly in sentiment. It surprised me. And yet it felt like the most honest expression of where I was in that moment.
Back in 2011, my first year of blogging, I wrote a post following a period of “sleep walking” which had lasted about a month. It was weird. I didn’t feel like myself. But I at least felt like I was a semblance of that self. Then I woke up.
Halfway through 2015, life upended again with a systemic mystery ailment that came with a wildly spreading rash, incessant itching night and day, extreme fatigue, loss of sleep, digestive issues and more. It lasted over a year-and-a-half before I finally self-diagnosed the issue and returned to normal living.
Six months later, by June of 2017, the rash was gone but I still couldn’t shake the fatigue. Willing to try almost anything, I took a black pill that touted promises of natural energy from rare and exotic sounding herbs—but which instead quite literally nearly ended my life.
Still, I pulled through. Got life back on track, feeling positive and focused.
In September of last year, however, I got whacked again. I alluded to this in my last post. But at that time, I couldn’t bring myself to write about the issue, since I was still very much in its thrall. I’m ready now.
In 2018, I began writing my next book in earnest; and by the end of my August vacation to Florida, I was about 70% finished. I returned refreshed, ready not only to finish the book within another 30 days, but to expand into some new ventures that had me feeling excited for the fall.
However, the very next day, all of that momentum ended.
I woke up with red, itchy, stinging eyes. At first, I thought it might have been from all the travel the day before. Or from my last dip in the hot tub or pool in Florida. Or maybe the beginning of seasonal allergies.
By the next day, I awoke to find both eyes sealed shut with goop. The itching and stinging had turned to burning and pain. My vision was blurred. This was more than allergies.
Still, I figured it was probably just conjunctivitis, maybe something I’d picked up on the plane ride home. No fun, but not the end of the world. In fact, I still had some Ofloxacin in the medicine cabinet from a short bout I’d had the year before. I started the drops, sure I’d be fine in a few days.
Three days later, however, my eyes were a painful mess. I could no longer see normally.
I went to the local pharmacy’s walk-in clinic, hoping for something stronger. Maybe I’d developed a tolerance to the Ofloxacin. I was started on a new eye drop.
Things got worse.
Within a few more days, the whole shape of my eyes had changed from the swelling.
I saw my primary doctor. He immediately referred me to an ophthalmologist. New meds, both oral and drop, were prescribed.
Within a week, the pain was so bad that I was balling up wash cloths, pressing them to both eyes and tying them in place with a belt. I have a very high pain tolerance, but it brought even me to pitiful tears and whimpering. Sometime in the night, I fell asleep. I woke with the right side of my face completely sealed to the pillow case, as if I’d lain in glue. I couldn’t open the other eye, even with help from my fingers. I felt my way to the bathroom blind, still clutching the pillow to my face, where I had to use warm water, little by little, to peel myself from the pillow and my eyelids apart. Even with that, my vision was reduced to a blur through narrow slits. And twenty four hours a day, as best I can describe, it now felt like someone had taken a handful of fiberglass filaments and blown them directly into my eyes.
I used ice packs. I lay on the bathroom floor, dousing my eyes with eye wash like you’d do for a chemical splash in a lab. Nothing made it better.
Four medications later, the ophthalmologist noticed ulcers in my eyes.
He transferred me to a corneal specialist who poked and dug and scraped. Another month, and four or five new medications later, and nothing had gotten better.
I did my best to put my own “best advice” into action:
“You always have a choice.”
“Being miserable is a choice.”
But even little choices were becoming increasingly more difficult to make. I could no longer read—computer or books. I couldn’t see to write. I couldn’t do graphic design projects. Driving was difficult at best and largely reserved for getting to and from the doctors. Still, from within these limitations and through the pain, I kept re-centering, looking for the ways I could still choose happiness over misery or complaining.
But then two months passed with no solution in sight.
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